National Data Resource Center

DESCRIPTION

In partnership with the Child and Adolescent Health Measurement Initiative and Champions for Progress, Family Voices provides a key role in the development of a Data Resource Center, an interactive website that allows access to data from national surveys about children's health. Currently the DRC contains information about two surveys: dinner table

National Survey for Children with Special Health Care Needs (NS-CSHCN), a survey sponsored by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) and Office of the Assistant Secretary for Planning and Evaluation of the Department of Health and Human Services, conducted from October 2000-April 2002. This survey examines the prevalence and impact of special health care needs among children and to explore the extent to which children with special health care needs (CSHCN) have medical homes, adequate health insurance, and access to needed services. Other topics include care coordination and satisfaction with care.
National Survey of Children's Health (NSCH),a survey sponsored by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) conducted from January, 2003 to July, 2004. This survey examines the physical and emotional health of children ages 0-17 years of age, with special emphasis on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.

Through feedback from many Family Voices Network members, the family perspective has been incorporated into this interactive website. The National Data Resource Center allows families to access information and data that is helpful to policy development at the state and national levels. Please visit the DRC at http://www.childhealthdata.org.

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Background Materials on the DRC

DRC One-pager (pdf: 57kb)
Basic handout on the Data Resource Center.
Quick Guide to Searching the DRC (pdf: 115kb)
A one-pager on how to find data on the DRC.
Quick Guide to Saving and Using Results from the DRC (pdf: 74kb)
A one-pager on how to save and use data.
Tech Tips & Tricks (pdf: 135kb)
A brochure handout with background on the DRC, the surveys, and examples of data you can find.

Examples of How Data from the DRC Can Be Used

Examples of the Impact of Data: Stories from Three Consumers (pdf: 130kb)
Three 1-page stories of how consumers have used data from the DRC to impact public policy.
How Does Caring for CYSHCN Affect the Work Life of Employed Family Members: A Story from the State of Washington (pdf: 115kb)
A 5-page document illustrating how data from the DRC was identified and analyzed to answer this question.

Materials Related to the Specific Surveys (NS-CSHCN and NSCH)

FAST FACTS about the NS-CSHCN (pdf: 50kb)
A 2-page Question and Answer Guide about the National Survey of Children with Special Health Care Needs (NS-CSHCN).
Quick Guide to Data Query Topics (pdf: 70kb)
A 1-page handout that outlines how to use the DRC Data Query function to find information about specific topics covered by the National Survey of Children with Special Health Care Needs NS-CSHCN.
Guide to Topics & Questions Asked in the NS-CSHCN (pdf: 104kb)
A 6-page handout outlining the questions asked in the National Survey of Children with Special Health Care Needs (NS-CSHCN).
FAST FACTS about the NSCH (pdf: 135kb)
A 2-page Question and Answer Guide about the National Survey of Children’s Health (NSCH).
Quick Guide to Data Query Topics (pdf: 104kb)
A 1-page handout that outlines how to use the DRC Data Query function to find information about specific topics covered by the National Survey of Children’s Health (NSCH).
Guide to Topics & Questions Asked in the NSCH (pdf: 89kb)
An 11-page handout outlining the questions asked in the National Survey of Children’s Health.

Data Resource Center Tutorial

DRC Tutorial (ppt: 3.75mb)
A collection of powerpoint slides that demonstrate the functions and uses of the Data Resource Center (DRC). This presentation was designed to encourage the use of data from the NSCH and NS-CSHCN surveys by families and others. Powerpoint slides can be selected and/or customized as appropriate for your purpose.

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